Rare cancer was not diagnosed for a long time?

Posted on Mar 11, 2010 under cancer news and reports |

I have a rare ovarian cancer that was not diagnosed after seeing four gynecologists. My ultrasound was misread and the radiologist said the growth was a benign fibroid. I am so sad because I tried soo hard to get help from the doctors and suffered with many symptoms. Finally the last doctor opened me up and found and a large tumor. I’m stage 3. How can I get past the what-ifs and concentrate on my recovery?

3 Responses to “Rare cancer was not diagnosed for a long time?”

  1. Drew M Says:

    I am sorry to hear about your situation. You can cure your cancer tho im sure of it! Never say never! Eat apple seeds! Look up the research on vitamin b17. Almost every disease has to do with nutrition. If you don’t believe in it try it! whats the worst that could happen.

  2. Pea Says:

    I am so sorry to hear about your recent cancer diagnosis. I can not even imagine the pain, sadness, anger etc. you must be going through. That must be so frustrating to have been telling the Dr’s and suffering and no one would listen until now. I had a friend with a similar situation where her cancer was missed and she was told to go home nothing was wrong with her. Now she is going through chemo. Take all the time you need to go through all of the emotions you are experiencing. Don’t let anyone tell you to quit being angry, sad, etc. You have the right to be and you need to experience those emotions so you can move on and concentrate on recovery. My thoughts are with you and you should inform those Dr’s that dismissed your cancer of your current diagnosis, so that they can remember how important it is to be careful and listen to their patients. You are in my thoughts and I hope the best for you! I know you are very sick but eatting well and researching cancer nutrition can be very beneficial to recovery. Also tai chi is supposed to do wonders for cancer patients. My friend with cancer goes 3 times a week when she isn’t too sick from chemo and it makes her feel better.

  3. Em Says:

    Receiving a diagnosis of ovarian cancer is difficult and life changing. Fortunately, medical advances have made treatments more effective. Women diagnosed in the earliest stages have a five-year survival rate of nearly 93 percent, according to the American Cancer Society (ACS).
    Until recently, ovarian cancer was known as a "silent killer" because it usually wasn’t found until it had spread to other areas of your body. But new evidence shows that most women may have symptoms even in the early stages, and awareness of symptoms may hopefully lead to earlier detection.
    Early detection is important; still, only about 20 percent of ovarian cancers are found before tumor growth has spread beyond the ovaries. Your chance of surviving ovarian cancer is better if the cancer is found early.

    Treatment of ovarian cancer usually involves a combination of surgery and chemotherapy.
    Surgery
    In most cases, you’ll want to have a gynecologic oncologist perform ovarian cancer surgery because they often have more training and experience with this type of operation.
    Chemotherapy
    After surgery, you’ll most likely be treated with chemotherapy — drugs designed to kill any remaining cancer cells. The initial regimen for ovarian cancer includes the combination of carboplatin (Paraplatin) and paclitaxel (Taxol) injected into the bloodstream (intravenous administration). Clinical trials have found that this combination is effective, though researchers are continually looking for ways to improve on it. A more intensive regimen has recently been shown to improve survival in women with advanced ovarian cancer by combining standard intravenous chemotherapy with chemotherapy injected directly into the abdominal cavity through a catheter placed at the time of the initial operation. This intra-abdominal infusion exposes hard-to-reach cancer cells to higher levels of chemotherapy than can be reached intravenously.

    Lifestyle and home remedies
    Eating well
    Good nutrition is especially important for people undergoing cancer treatment. But eating well can be difficult for a time if your treatment includes chemotherapy or radiation therapy. You may feel nauseated or lose your appetite, and foods may taste bland or unpleasant. You may find that the last thing you want to do is plan meals.Even so, eating well during cancer treatment can help you maintain your stamina and your ability to cope with the side effects of treatments. Good nutrition may also help you prevent infections and remain more active.
    Remember these strategies for eating well when you don’t feel well:
    * Eat protein-rich foods. Foods high in protein can help build and repair body tissues. Choices include eggs, yogurt, cottage cheese, peanut butter, lean meat, poultry, fish, beans and lentils.
    * Keep an open mind about the foods you might eat. Something that is unappealing today might taste better to you next week.
    * When you do feel well, make the most of it. Eat as many healthy foods as you can. Prepare meals that you can easily freeze and reheat. Also look for low-fat frozen dinners and other prepared foods.
    * Pack calories into the foods you eat. For example, spread butter, jam or honey on bread. Sprinkle foods with chopped nuts.
    * Eat smaller amounts of food more frequently. If you can’t face the thought of a large meal, try eating small amounts of food more often. Keep fruits and vegetables handy for snacking.
    Staying active
    Even if you don’t feel well, try to stay physically active. A regular, short walk or climbing the stairs can keep your muscles from deteriorating due to lack of use. Exercise can also help prevent fatigue and depression and reduce anxiety.
    In addition, activities that require repetitive movement, such as swimming, can produce a mental state similar to that achieved with meditation. The same is true of yoga and other stretching exercises.
    I’m sorry it’s so long but I wanted to make sure you have a fighting chance. your attitude is good, move on & fight.

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